Fabry profile

You now have the option to create your own personal Fabry profile, with which others can quickly and easily gain insight into your situation.



The choice of what information you want to share in your Fabry profile is entirely in your hands. Therefore, only answer the questions you want to share with others.

How can you create a new Fabry profile?

  1. Enter your name and choose the language in which you want to create your Fabry profile.

  2. Then click on the blue button to go to the questionnaire.

  3. Answer questions about you and your disease on the next page.